Support Organisations

There are a number of support organisations nationwide and in the Barnet area - listed below are ones that parent/carers find most useful. Although we make every effort to ensure these links are accurate, up to date and relevant, Oakleigh School cannot take responsibility for pages maintained by external providers.

If you have any suggestions for web sites that you have found useful please let us know.

Caudwell Children supports families with children aged 0 - 18 years with a range of life limiting and other conditions including Autism, Cerebral Palsy, Down’s Syndrome, chromosomal conditions, Learning Difficulties, Sensory Impairment, Epilepsy and Acquired Brain Injury.

There may be income restrictions to being able to receive support, please see: www.caudwellchildren.com/how-we-help

Visit Caudwell Children

Carers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. With our Network Partners, we aim to ensure that information, advice and practical support are available to all carers across the UK.

Visit Carers Trust

Founded in 2001, Cerebra is a unique national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support. They are dedicated to helping families with children with brain conditions discover a better life together.

 

Visit Cerebra

Climb (Children Living with Inherited Metabolic Diseases) is the United Kingdom's foremost provider of free metabolic disease information to young people, adults, families, professionals and other interested groups. Through a well trained and experienced team they deliver: Family and Community Services, Awareness and Advocacy and Information and Research.

Visit Climb

Contact- a charity for families of disabled children. Contact a is a national charity that exists to support the families of disabled children whatever their condition or disability.

Visit Contact

The Council for Disabled Children (CDC) is the umbrella body for the disabled children's sector in England, with links to other UK nations. They are the only national body that brings together the diverse range of organisations that work with and for disabled children to support the development and implementation of policy and practice. Their work impacts on over 800,000 disabled children and their families.

Visit Council for Disabled Children

Family Lives is a national family support charity providing help and support in all aspects of family life. They provide professional, non-judgmental support and advice in a way that all members of the family can freely access. Nearly all of their services are accessible at no charge to parents and you can contact them 365 days a year.

Visit Family Lives

Hope is a charity dedicated to supporting families and children that have been affected by Epilepsy. Epilepsy can have a devastating impact on a family. HOPE London provides a safe space for families to socialise, reduce isolation and build relationships. As well as sharing information, Hope for Paediatric Epilepsy: London offers access to support and guidance and most importantly for children to have some fun!

Visit Hope London

Kith & Kids provides activities, opportunities, information and support for people with a learning disability or autism, their parents and siblings. They empower families living with disability to overcome their social isolation and access the services they need.

Visit Kith & Kids

At Learning Disability Today you will find the latest news and views in learning disabilities, videos and a selection of the best articles from the print edition of Learning Disability Today. Additionally, there is a bookshop and jobs section.

Visit Learning Disability Today

If you are a parent or carer of a disabled child, or a healthcare professional looking for ideas, advice and information about daily living equipment then the Living made easy for children web site is a wonderful resource that you can trust.

Visit Living made easy for children

Mencap is a UK charity for people with a learning disability. They also support their families and carers, too. Find out more about our services and get involved.

Visit Mencap

The National Autistic Society's Parent to Parent (P2P) Service is a UK-wide confidential telephone service providing emotional support to parents and carers of children or adults on the autism spectrum. The service is provided by trained parent volunteers who are all parents themselves of a child or adult on the autism spectrum. Volunteers are based across the UK so you don’t have to share information with someone in your local area.

Visit NAS Parent to Parent Service

At One Place for Special Needs you can make connections with other special needs families and get practical information to help your child at home, school and the community. Based in North America but still very useful.

Visit One Place for Special Needs

Rainbow Trust supports families who have a child aged 0-18 years with a life threatening or terminal illness and need the bespoke support we offer. They support these families who have a child with a life threatening or terminal illness and are in the greatest need. Their Family Support Workers provide a life line to these families and children.

Visit Rainbow Trust

Sky Badger is a charity that finds help and adventure for disabled children and their families all over the UK. They do this by building bridges between disabled children and the charities and services available to help. They do this by building bridges between disabled children and the charities and services available to help.

Visit Sky Badger

Special Kids in the UK is a charity for families who have a child of any age with special needs.Their aim is to bring families together for friendship, to share information and to support one another.

Visit Special Kids in the UK

SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.

Visit Swan UK

As part of its services, Unique runs telephone (+44 (0) 1883 723356) and email (info@rarechromo.org) helplines for new and existing member families and professionals to find out more information about the group and about specific rare chromosome disorders.

Visit Unique

VICTA supports children and young people who are blind or partially sighted and their families across the UK. If you are the parent of a blind or partially sighted child or young person or you are visually impaired yourself and under the age of 29 then VICTA can help.

Visit Victa