There are a number of support organisations in the Barnet area - listed below are ones that parent/carers find most useful.
AidExcel is a parent led organisation based in North Finchley, staffed by volunteers who are trained to provide information and advice on a range of issues faced by families with disabled children. These include accessing benefits, finding services and developing skills. Contact AidExcel at www.aidexcel.com, Office: 0203 583 4260 or Helpline 0203 239 1273.
Carers Trust works to improve support, services and recognition for anyone living with the challenges of caring, unpaid, for a family member or friend who is ill, frail, disabled or has mental health or addiction problems. With our Network Partners, we aim to ensure that information, advice and practical support are available to all carers across the UK.
Stennett & Stennett Solicitors are also now providing Barnet Carers and their families a special offer for one week only. From Monday 29 September to Friday 3 October 2014 only carers can take advantage of cut price wills and LPAs at the special price of: £99 per person per will including VAT, saving over £100; £399 per person per Lasting Power of Attorney (LPA) including VAT & court fees, saving over £300; £599 per person executing both types of LPAs all inclusive, saving over £450. These prices will only apply for this limited time, and terms & conditions apply. If you wish to take advantage of these offers, you must telephone Stennett & Stennett in advance to arrange an appointment on 020 8920 3190. Please note that these appointments will be at Stennett & Stennett offices at 4 Winchmore Hill Road, Southgate N14 6PT. Website: www.stennett-stennett.co.uk.
Caudwell Children supports families with children aged 0 - 18 years with a range of life limiting and other conditions including Autism, Cerebral Palsy, Down’s Syndrome, chromosomal conditions, Learning Difficulties, Sensory Impairment, Epilepsy and Acquired Brain Injury.
Hospital Support: Cauldwell Children work in hospitals across the country, with their Hospital to Home support. They work with the hospital teams and families to help get the family home as soon as they can following diagnosis. They can provide financial help for parking, travel, accommodation, of which they can support them to find. They look at what respite support they can find for siblings or other children within the home that might have another condition.
Family Support: They work closely with other organisations to access a full package of support for the whole family. They know the impact a sick child has on siblings and in relationships within the family and try their best to address as many of those issues as they can.
Equipment: Cauldwell Children offer families access to trikes, powered chairs, specialist buggies, car seats, sensory bundles and various therapies. Cauldwell Children pay 80% cost of the equipment and that then belongs to the family.
There may be income restrictions to being able to receive support, please see: www.caudwellchildren.com/how-we-help/core-services
Caring With Confidence is an organisation that offers a programme, funded by the Department of Health, of free, flexible support sessions enabling carers who look after a friend or relative the opportunity to develop their skills and knowledge to help improve their own lives and that of the person they care for. Telephone: or 0800 849 2349.
Cerebra have produced a financial help guide called Disabled Children Parents’ Guide: Money Matters. This guide has been prepared for parents of disabled children who want to know what financial help may be available for them and what arrangements they may need to put in place to manage their children’s finances from birth and as they get older.
News from Cerebra
- Toilet training for children with autism and intellectual disabilities - download the guide
- Wills and Trusts Voucher Scheme – see Wills & Trust link
- Travel and Holidays – visit Cereba Travel Info
Climb (Children Living with Inherited Metabolic Diseases) is the United Kingdom's foremost provider of free metabolic disease information to young people, adults, families, professionals and other interested groups.
Counselling Services from Raphael House Barnet
Contact A Family is the only national charity that exists to support the families of disabled children whatever their condition or disability. Their support includes guides for fathers and grandparents, and up to date information on a wide range of medical conditions. 020 7608 8700 or www.cafamily.org.uk
Dogs Trust Freedom Project provides a free and confidential fostering service in Greater London for dogs belonging to families fleeing domestic violence.
Volunteer Befriending Scheme Referral Service
The befriending scheme is a voluntary option for mums, dads and carers of children offered by Family Lives (formerly Parentline Plus). The scheme is free of charge to families and is a confidential service. Consent of the parent needs to be obtained before making a referral – parents can self refer.Family Lives has over 30 years experience working with families. This is a pilot project where we are working in a new way with volunteers and the work will be externally evaluated. This service is offered by the largest independent provider of parent support and is locally funded by the Department of Health.
Download Referral PDF form or complete online form.
Firefly Friends Special Needs Blog is somewhere parents, therapists and carers can chat, share and read about special needs family participation.
Also check out Firefly Garden Special Needs Community. The Firefly Garden is a supportive online special needs community of mums, dads, brothers, sisters, grandparents, experts and professionals helping each other solve the daily problems special needs families like ours face.
Kith & Kids provides activities, opportunities, information and support for people with a learning disability, their parents and siblings. They help the whole family to overcome social isolation and live more fulfilled lives. Kith & Kids shops offer free home collections for unwanted household items. Visit them at: www.kithandkids.org.uk or call them on 020 8801 7432.
Learning Disability Today - Here you will find the latest news and views in learning disabilities, videos and a selection of the best articles from the print edition of Learning Disability Today. Additionally, there is a bookshop and jobs section.
Living made easy for children - If you are a parent or carer of a disabled child, or a healthcare professional looking for ideas, advice and information about daily living equipment then this web site is a wonderful resource that you can trust.
Mencap offer advice on Wills and Trusts. If you want to provide for the financial future of a family member or a friend with a learning disability, it is important that you make a will. They offer a guide to wills and trusts which explains among other things how to create a trust. [more info].
National Autistic Society's Parent to Parent Service
Parent to Parent (P2P) is the NAS’ UK-wide confidential telephone support service providing emotional support to parents and carers of a child or adult with autism. The service is provided by trained parent volunteers, who all have at least one son or daughter with autism. The Parent to Parent volunteers are based across the whole of the UK, this means that there is increased anonymity for parents who may not want to share information with someone in their local area.
The volunteers have a wealth of experience, knowledge and insight and can talk through any issues, problems or feelings parents are experiencing. They all know what life can be like for families affected by autism and want to do something to support others in similar situations. They can also direct callers to other sources of information and support.
Parents and carers can contact the service via phone or online. You can either call 0808 800 4106 at any time day and night and leave a message. It is not a manned line, but if you leave a message, a volunteer will call you back as soon as possible, at a time which suits them. Alternatively you can fill in an online enquiry form by visiting the Parent to Parent pages of the NAS website. You can find more information about the service on their web page and download a copy of our leaflet..
One Place for Special Needs
Make connections with other special needs families and get practical information to help your child at home, school and the community. Based in North America but still very useful.
Rare Share is a unique international social hub building communities for patients, families, and healthcare professionals affected by rare disorders. While rare disorders seem to impact only a small portion of the population, together they affect over 30 million people in the United States and Europe.
The Rainbow Trust in Barnet
Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with a life threatening or terminal illness. They run occasional drop-in groups in Barnet, at:
The Hyde Children’s Centre
For centre opening dates & times please visit them at www.rainbowtrust.org.uk or telephone 01895 448378 for details.
Skybadger is a charity which provides help, advice and opportunities for children with disabilities. Their website includes special offers and free tickets, disabled sports and clubs, toys and gadgets. Visit them at: www.skybadger.co.uk
Scope offers advice on sleep difficulties in children. Sleep deprivation in disabled children can have a distressing effect on families. Often there are simple measures that can be put into place that may help to overcome the difficulty. [more info]
Special Kids in the UK is online support group/forum for families of disabled children with special needs. Special Kids in the UK is a charity for families who have a child of any age with special needs and provides lots of info and subsidised activities too (e.g. camping in the summer).
Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. They have a lot of information on more than 130 disorders, and run various conferences. Unique is a UK-based charity but welcomes members worldwide.
VICTA (Visually Impaired Children taking Action) is a not-for-profit organisation that supports visually impaired children and young people by providing funding for equipment (CCTV’s, laptops, Braillers, sensory toys etc) and for vacation schemes such as those run by Action for the Blind.